Sheer brutality and trauma caused Myasthenia Gravis. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. I have recently found out that I have aortic regurgitation will soon be needing surgery. Bicuspid Aortic Valve: Symptoms, Diagnosis & Treatment, Biological Tissue Valves: Pig, Cow, Horse & Human, The Patient's Guide To Heart Valve Surgery. Are there any things I can do now to help minimize my risk? On April 16, 1997, Arnold Schwarzenegger underwent elective heart surgery to replace a defective, congenital aortic heart valve. Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. The doc says the big risk is due to the blood thinners. Im due to have an exercise tolerance test soon, but from my dealings so far Ive lost faith in the level of competence of my current cardiologist. Is it like keyhole surgery? He sees his cardiologist every year. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. Bicuspid aortic valve. Susp. I am a 60 yo female who has been active my whole life. It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. Bicuspid Aortic Valve | Circulation The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. Replacement? To the extent that any operation fixes the stenosis or regurgitation, we might expect better efficiency from the heart. Also I lift weights . Assuming that 2% of the US population has bicuspid aortic valve disease, that is 6,278,281 people. Very likely an operation will be needed at some point in the future. I have severe aortic stenosis with no signs or symptoms. Bicuspid aortic valve can be found in 1% to 2% of the general population . 2012; 109:1632-1636. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). We have made the decision to stop playing high school soccer and will reevaluate in 6 months to determine about Spring team soccer (less intense). "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. He would be devastated to never be able to play again. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. Kinda like a marathon but it will take me at least 9 hours. He is certainly expert in the area of drug therapy to reduce the rate of aortic enlargement. In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. When first diagnosed with BAV I just nodded and smiled it was only the following day that reality hit home and I thought of all of the questions that I would have liked to have asked the cardiologist! Im paranoid to exercise too much for fear that I will do damage to the valve. My average weekly training plan includes 50k of running (5 days) with 80% done on pulse below 154-152 and only 20% done at pulse about 175-179 bpm. A bicuspid aortic valve only has two of these leaflets. Here are stories of some celebrities with this condition: Not everyone who has a congenital heart defect knows about it, so its important to be vigilant about the health of your heart. Eventually I will need valve replacement. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Will I need meds? Aorta diameter (34 mm|34 mm); Young Patient Feeling 'Supercharged' After Bicuspid Aortic Valve Surgery Bobbie. It functions as a one-way valve, opening and closing with each heartbeat, which keeps the blood flowing in the correct direction. Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. Surgeon Q&A: What is TAVR Valve-in-Valve? Or usually lead a normal life? Aortic Stenosis Am I crazy? The Best Amazon Presidents' Day Deals of 2023. 1, 2 Much of the data relating to its complications derive from necropsy studies since reliable . No pulmonary hypertension I do not feel any of the effect of my condition when I run or workout. Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. But neither of these procedures are durable for the long-term. Thanks for sharing your sons story. I have BAV with an ascended aorta and heart murmur. If you wont we can share experiences about healing and progress, its pretty much same situation. Thats always the concern with new techniques with limited follow-up data. Im just going to do my very best to stay the course and have annual echoes to track my valve. Im 33 and I do jiu-jitsu. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? We briefly talked about the Ross procedure vs mechanical valve replacement. Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. Dear Dr. Creswell, Outcomes in Adults With Bicuspid Aortic Valves - JAMA Aaron Boone (@AaronBoone), famous baseball player suffered from Bicuspid Aortic Valve. Periodic re-evaluation with echocardiogram and/or CT scanning is used for most patients in this circumstance. That is to say, I did up until two months ago. In late March, Schwarzenegger was heavily involved in a chess tournament with his donkey Lulu. Hi all, The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. Have completed an excercise stress test and signed off as ok on reaching level 13. Negative Stress Echocardiography Dont see why HIIT should be excluded. Over time, these patients need to be monitored for continued proper function of both the pulmonary valve (that was borrowed) and the new substitute for the pulmonary valve. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. Robbie Benson - Actor/Director - Bicuspid Aortic Valve. He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? So it's got the Rock and Roll Hall of fame and great doctors. He is on meds to slow it down. Ordinarily, race walking is considered to be in the same category of activity as long-distance running. Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. Although bicuspid aortic valves can occur . Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. I am playing basketball I am doing 100m and 200m and swimming . Can you clarify what may not be true please? Did you run? Also I seemed to get quite sweaty the following hours after a hard training session. In addition, I will get a random bout of lightheadedness when standing or sitting in a awkard position. I cant imagine life without CrossFit, but I wont be able to continue will I? Thank you for best websit. And now my aortic root is 42 mm. All they said is dont really do weight where you can feel the strain in your neck ?!? Thanks for the infoI really appreciate what you,have to say. 5 months ago was diagnosed with severe AR and 5 cm long aneurism (root 3.0 cm, sinusi valsave 4.3cm, ST 3.6cm, ascending aorta 3.6cm) on regular yearly checkout, with no syptoms. (Or do I just need to train even harder??). His aorta is lightly enlarged. Im 39 also diagnosed with BAV when I was 31. At this appointment she advised that there has been some progression in his regurgitation and she did a stress test on him which did not show any concerns and hey was a ble to do it for almost 12 minutes. Maybe a genewho knows. I have a call in to his doctor but what do you think? Tachcardaia beetwen echo due that doctor couldent see clearly. My surgeon says that the aneurism and bav go together. Is it possible that the valve will get loose? Before that, I had never seen a cardiologist ever. And judgment would be needed. We want our patients to know that whatever the level of care they need, our team will design and implement the health plan that works best for them, Starnes said. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. Sounds like youre on the right track by getting things evaluated. Thanks for my previous response a few weeks ago. New guidelines from the American College of Cardiology (ACC) were published just this week. Consensus guidelines from the Proceedings of the 36th Bethesda Conference recommend: The first recommendation does not include the endurance sports. I dont train a lot, like 2k bike, 500k run and 100k swim yearly and few competitions sprints and one half IM in a year (32 years old). This international evidence-based nomenclature and classification consensus document is intended for universal use by clinicians, imaging specialists . If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Semilunar valves: The pulmonary valve and aortic valve. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min. Thank you for your time Dr.! Celebrity. I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . I would think that, ordinarily, a homograft would heal up along a similar timeline to other types of valve/aortic root replacement. Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. His doctor said his heart look very healthy and no other issues.